Links
These websites may interest practitioners and families with a disabled child - some are specifically for parents.
Government departments and initiatives
Directgov - Information on Special Educational Needs (SEN)
www.direct.gov.uk/en/Parents/Schoolslearninganddevelopment/
SpecialEducationalNeeds/index.htm
Department of Health
www.dh.gov.uk
Sure Start
www.surestart.gov.uk
Every child matters
A website that brings together all the Government's plans for restructuring services for children
www.everychildmatters.gov.uk
Newborn Hearing Screening Programme
http://hearing.screening.nhs.uk/
Parentscentre
A DCSF website for parents covering a wide range of issues, including special needs
www.parentscentre.gov.uk
Directgov
A website with information for parents provided by all the major government departments
www.direct.gov.uk/Parents/fs/en
Other useful organisations
Afasic
www.afasic.org.uk
Association of Children's Hospices
www.childhospice.org.uk
Association of Professional Music Therapists
www.apmt.org
Association for Spina Bifida & Hydrocephalus
www.asbah.org
British Defects Foundation
www.bdfnewlife.co.uk
British Epilepsy Association
www.epilepsy.org.uk
British Stammering Association
www.stammering.org
Care Co-ordination Network UK
www.ccnuk.org.uk
Child of our time (BBC series)
www.open2.net/childofourtime/2006/index.html
Children's Trust
www.thechildrenstrust.org.uk
Children Living with Inherited Metabolic Diseases
www.climb.org.uk
Children with diabetes
www.childrenwithdiabetes.com
Contact a Family
www.cafamily.org.uk
Council for Disabled Children
www.ncb.org.uk/cdc/
Deaf Parenting Project
www.deafparent.org.uk
Deafness @ Birth
www.deafnessatbirth.org.uk
Down Syndrome Education International
(formerly Down Syndrome Educational Trust)
www.downsed.org
Down's Heart Group
www.dhg.org.uk
Down's Syndrome Association
www.downs-syndrome.org.uk
Dyspraxia Foundation
www.dyspraxiafoundation.org.uk
Ear Foundation
www.earfoundation.org.uk
Early Childhood Unit, National Children's Bureau
www.earlychildhood.org.uk
Encephalitis Society
www.encephalitis.info/
Erb's Palsy Group
www.erbspalsygroup.co.uk
European Association on Early Intervention (EAEI)
http://www.eurlyaid.net/
Face 2 Face
www.face2facenetwork.org.uk
Family Fund
www.familyfund.org.uk
Home-Start
www.home-start.org.uk
Hyperactive Children's Support Group
www.hacsg.org.uk
ICAN (the children's communication charity)
www.ican.org.uk
Interconnections Electronic Bulletin
An information source for professionals working with children with complex needs
www.icwhatsnew.com/bulletin/index.htm
International Society on Early Intervention (ISEI)
http://depts.washington.edu/isei/
Leukaemia Care Society
www.leukaemiacare.org.uk
Makaton Vocabulary Development Project
www.makaton.org
Mencap
www.mencap.org.uk
Muscular Dystrophy Campaign
www.muscular-dystrophy.org
National Association of Toy and Leisure Libraries
www.natll.org.uk
National Asthma Campaign
www.asthma.org.uk
National Autistic Society
www.nas.org.uk
National Childminding Association
www.ncma.org.uk/
National Children's Bureau
www.ncb.org.uk
National Deaf Children's Society
www.ndcs.org.uk
National Eczema Society
www.eczema.org
National Portage Association
www.portage.org.uk
National Society for Epilepsy
www.epilepsynse.org.uk
Prader-Willi Syndrome Association
www.pwsa.co.uk
Royal National Institute of Blind People
www.rnib.org.uk
Royal National Institute for Deaf People
www.rnid.org.uk
Scoliosis Association UK
www.sauk.org.uk
Scope
www.scope.org.uk/earlyyears and
www.rightfromthestart.org.uk
Sense - the National Deafblind and Rubella Association
www.sense.org.uk
Sickle Cell Society
www.sicklecellsociety.org
Sunderland Children and Young People's Strategic Partnership
One of our Pathfinders
www.sncwd.org.uk
Talking Point - speech, language and communication difficulties
www.ican.org.uk/sitecore/content/TalkingPoint/Frontpage.aspx
Together for Children - Children's Centres
www.childrens-centres.org
Twins and Multiple Births Association
www.tamba.org.uk
Unique - Rare Chromosome Disorder Support Group
www.rarechromo.org
UK Thalassaemia Society
www.ukts.org
Whizz-Kidz
www.whizz-kidz.org.uk
Working Families
www.workingfamilies.org.uk
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